Kim's Keloid Page
California, USA
KIM'S HOME
Page
Yep, a whole entire page dedicated
to my old friends, my keloids!
I have had these babies for
well over
20
years now, they're like part of my
family in that they are a true, physical
part of me.
Though I may hate them and curse
them when they jolt me awake at
night, I have to deal with it. This is my
way of handling it, sharing it with
you.......
Imagine my excitement one
night while watching my
all-time favorite sci-fi show,
FARSCAPE, when suddenly,
this alien creature, covered
in what can only be
described as "the keloids
from hell", pops on the
screen!

I was so happy! The Keloid
Queen, as I affectionately
call her!

This means that in the future,
not only will keloids be the
height of fashion, they will
also belong to a whole race
of humanoids who will stare
and FLASH DISGUSTED
LOOKS TO THOSE who
don't have KELOIDS!
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"Righty" is so much a part of my
everyday life. He wakes me up
in the morning with a fiery,
jolting pain. He itches constantly
and sun really does a number
on him (makes him grow and
turn bright red!)
KELOID FACTS

there is no effective treatment to stop
keloids from forming.

keloid surge
ry and treatment are not
covered by most heal
th insurance
plans
as they are considered (by
those who don't have them) as purely
cosmetic


keloid scars can burn, itch and are
very sensitive when they get bigger.

keloids occur most commonly in
African-Americans and other
heavily-pigmented people
WHAT TREATMENTS HAVE I TRIED?

STEROID INJECTIONS
CREAMS, OILS AND MASSAGES
SILICONE GEL SHEETS
...PRAYER..
.

Don't be fooled by all the cremes and gels
out there that claim to "cure" or diminish
keloids. They don't work. Keloids form from
defective genes, and so far, medical science
has not yet created any cremes or oils that
change the body's genetic make-up.




So far, only the injections worked. I have yet to be
able to afford them again...and so I wait...
I've got two keloids on my left
shoulder.  They are  longer and
skinnier.

Luckily, they are a bit flatter and not
as hideous.  I think they became
flatter because when I was pregnant,
I used to lie on my left side all the
time because it was easier.

I slept like that for a good 9 months,
and I think the pressure on it flattened
it.

I try now to sleep on my right side with
the hopes of flattening Righty, but so
far, no luck. I think because it is so
big and thick.

I had a large keloid on my neck, on
the right side. I got that from a
chicken pox scar when I was about 9
years old. At the time, my mom had
me get the steroid injections and it
shrank and became softer and flat,
until now it's hardly noticeable.


The keloid in my navel, where I also
have a piercing, shrank and went
away on its own...which was amazing
to me. I have never known that was
the nature of some keloids, which
makes me wonder if there are some
genes or chemicals inside certain
people that make keloids respond in
different ways.
Well, now you've seen inside of me by looking what's on the
outside that causes me to feel the way I do on the inside.

I'd like to know what you think. Feel free to email me or sign
my guestbook.  Fellow keloid sufferers, we need to get
together and force the medical community to look at this
and find some cure, relief or prevention. With all the
advances in gene therapy, we must be closer than ever to
finding out something NEW.

I would love to get in touch with one of the leading
dermatologists or genetic  pathologist for clinical studies
and cutting-edge research.

My email:
kim@orbitgal.com
I hate my keloid, yet I have learned to live
with it...no matter how self-conscious it's
made me.

I cover up as much as I can.

I apologize for making the image so blantant
and huge, but when I get stared at, I feel as
though the keloid is actually THAT big!

Sadly, I have had "boyfriends" who have left
me because they couldn't get past the
ugliness of the scar.
I also have two keloids on my right ear lobe,
one on the front and one on the back side
where I had a bad experience with a bad
piercing job.  

They are not as hard or as big as the others
and have yet to increase in size.
Dear Kim,

I came across your website about Keloids. I'm also suffering
from a keloid, which has grown on
the nape of my neck.

At the moment I'm so down, don't think I've ever been
so low. Because it's on my neck, it's difficult to
hide, even the younger members of the family turn
their faces when they see it.

As for dating, not many women are interested, because
of this ugly thing on my neck, always some sort of
comment made about it. I've tried everything, I'm from
the uk, and there doesn't seem to be a single doctor
here with a cure.

Seeing all my close friends getting married and having
babies last and this year, really hit me, I am now the
only single person left out of our group.

One of my friends will be getting married in two
months time, and wants me to be the best man, which is
great but to tell the truth, I am dreading that moment
when standing at the front with all those people
watching and maybe laughing from behind.

I just can't believe that something like this can make
you feel so low in life, I hate crowds etc because of
this. Sometimes I wish I could be on an Island on my
own, without worrying about crowds people with their
comments.

Oh well life goes on, hope there is a cure some day
soon, hopefully before I find this lonely Island.

Regards

C.
The letters on this page came from
doctors, strangers, and friends. All
of us sharing a commonality:
somehow, in some way, keloids
have affected our ways of life.
Some names have been omitted
for privacy.
Dear Kim,


Thank you for your email. I went to your web site and to the Support group. You have done a great job with the sites. As you
experienced, nobody can say what treatment really works. I am not the best person to ask either, because all we do here is research
on the cause for keloids. There is no best cure for keloids. However, there are trials being done with a number of cytostatic agents,
other treatments are conventional with injection of corticoids, surgery, irradiation. Some treatments work for some patients but not for
others. This is frustrating for physicians, too. Not being a physician myself, I can’t recommend anything else, but seeing a
dermatologist who has experience with keloids.


Our goal is to find gene mutations that cause keloids in the first place. Once the genes are known, it should be possible to develop a
much better treatment or prevent keloids in susceptible individuals. At this time we are looking for families where keloids are inherited
– that means where there are several family members with keloids. We then ask for information about the keloids (if possible pictures)
and certain family members will be asked to donate a small amount of blood, which we use for DNA isolation and genetic analysis.
(Recruitment can be done by mail, email, telephone and FedEx, unless the family lives close to a collaborating physician). Since
research on keloids has not come up with any good explanation for their cause, I think that the genetic approach is the only way to go.
We make sure that there are no costs for the blood drawing etc, and even pay a small amount to compensate for the inconvenience.
We have made some progress, but still have a fair way to go.


Right now we do not recruit sporadic cases (only on keloid in the family), but at a later step we may do so. First we need to focus our
attention on familial keloids and do the genetics.


May be you can even help us find such families through your contacts or point them to our keloid web site. The more families
participate, the faster we will get results. Perhaps our research will lead us to a new collagen inhibitor?  


I am sorry that I couldn’t be of more help, but hope that our research will help you in the future.


Please keep in touch.

Ernst Reichenberger

----------------------------------

Ernst Reichenberger, PhD

(Assistant Professor)

University of Connecticut Health Center (UCHC)

Department of BioStructure and Function

263 Farmington Avenue Farmington, CT 06030-3705


Tel:    860-679-2062

Fax:   860-679-2910

email:  reichenberger@uchc.edu
Thanks for the site, I'm a newbie and have yet to name my
keloids - interestingly enough, my surgeons (keloids are
from surgery) evaded questions and played the hideous
scarring off as nothing to worry about and that they'll go
away eventually.  As I navigate the web, it is becoming
obvious to me that little is know about this condition.  It
is as though I have entered a kind of subculture of
society...
Thanks again for the site.
Hi Kim

My name is Dr. S.  I too suffer from the awful grip of disfiguration by
keloids.  Mine first appeared around 1988.  I played football and constant
breakage of skin induced by my shoulder pads, played an instrumental role in
my development of keloids that I still have to this day.  

Because of God's grace, I have had the chance to be treated for the past 14
years with steroid injections.  It hasn't been until the last five years that I have
seen a dramatic result.  I began to do a little research on my own and consult
a little closer with my dermatologist.  My situation is a little unusual in the
aspect that I am a Ph.D. candidate in Physiology.  It allows my to discuss my
condition in a little more detail each time I visit my doctor.  

We have discussed a number of treatments but usually I stick with the
injections.  He also turned me on to a new therapy that is being using in
conjunction with the injections.  Is a topical cream called ALDRA.  It is
normally used to treat genital warts but it has had some promising results in
the treatment of hypertrophic scars.  Somehow it suppresses an immune
reaction associated with the formation of collagen, a key player in the
development of the keloid scar.  He prescribed a two month supply for me
and I can truly see a difference.  The scars although still present, are greatly
reduced in roughness and color.  They are a lot softer.  Now I haven't seen
this same results in two of my scars but they do seem to be softer.   It is a
very expensive treatment without insurance.  For example each prescription
would cost around $160.00 at my pharmacy without a insurance.

I also have used a sheetless keloid scar gel known as SPECTRAGEL.  You
can find it on line.  It is made by a company in CA (Carpinteria, CA  
Spectrum Designs Medical, INC).  The only thing about this gel is that it
stains your undergarments.  It also has an effect on soap, i.e. reduced
lathering of the soap.  I must say though that I did see some result with this
product also.  It is not that expensive.  I think a tube cost around $30.00.  If
you could however, I would suggest the ALDRA.  Some doctors suggest
that it be applied everyday but I got the best results when I applied it every
other day.

All in all, it just takes a lot of time and patience in the treatment of these
scars.  I noticed that you said that your insurance doesn't cover the cost of
injections.  My doctor has accepted my insurance for all 14 years.  It might
just be in the way that your physician is referring to your condition.  I would
ask if he/she could use another term for your scar for insurance purposes.  

I hope and pray that everything works out for you.  I would love to hear how
it goes for you.  May your week be blessed.


Cordially,


Dr. S., Ph.D. Candidate
Hello , Kim.

My name is B. I have had k's since
my senior year in high school.
They ruined my acting career. But
they also have made me a more
understanding person.

It gets hard at times because in
addition to k's on my chest I have
fairly large ones on my face and
ears. People can be very rude and
even cruel. Kids are the worse
because they arent afraid to
point , stare or ask embarrassing
?'s .

I have had k's from ears removed
but they came back. There's an
herbalist in L.A. who has helped a
lot of people named Dr. Sebi(he
has website), but he cost about
$500 which is way affordable
compared to removal. I hpoe to
start treatment soon. I really
appreciate your help so this
e-mail is to thank you for your
site and p.o.v. . Please send me any
info you get and I'll do the same.
Thanks , B
I have been on your web site and viewed your Keloid scar.  I also am a "sufferer" but unlike you I don't just
suffer with one, I have in excess of 20 of the bloody things!!!!  Mine are on my chest and my shoulders.  I
can't/don't wear any revealing tops and always cover mine up.   I'm lucky to say though that I have a
wonderful loving husband or is very supportive of my condition, he says that he wouldn't have me any other
way.


I am 28 and white skinned (which I know is uncommon) and this condition doesn't run in my family (my Dad
has a scar on his neck where he had a mole removed, but it is not a keloid, it's just bumpy.


It's really nice to read your comments and know that there are others out there.  I was told by my local
hospital that I was the "worst case" they had seen.  I must admit I had steroid injections in the past, but
stopped as getting days off work became hard (without revealing my problem).  I am getting more and more
confident about telling people, it's part of me, so I try and take the attitude "like it or lump it" (excuse the
pun!!!), but it is very hard not to get emotional about it.


Anyway sorry to babble on - seeing as though you're so good with computers (and I am not!), can you help
me get registered with one of the chat rooms, I would be very interested in sharing a few opinions thoughts
and even a little knowledge/experience may come in handy for someone.  


So could you let me know what to do to become a user of yours please?


Hope to hear from you soon.

M.
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Hi Kim,
Your website was very comedic and made me fill a little better about my
keloid. It is nice to see that you can have a sense of humor about the
whole thing, I feel that is a very healthy way of dealing with this. My keloid
is on my breast area and has been there for about 12 years, and to be
honest with you, I don't even know what it's from. I too wish that this
problem could be looked at more seriously; but until then I'm with you
sista.

Take care and God bless,
M.
KIM,
MY NAME IS K AND I COULDN'T SLEEP SO I WAS JUST BROWSING AND CAME
ACROSS YOUR WEB SITE.  I HAVE HAD KELOID SCARS ON MY CHEST FOR A LONG
TIME.  I HAD SURGERY ON THE BIGGEST ONE AND IT ONLY GREW BACK AFTER
THE STITCHES CAME LOOSE.  ITS BIGGER THAN IT WAS TO BEGIN WITH.  I KNOW
HOW YOU FEEL.  

THEY HURT, ITCH AND MAKE YOU FEEL SELF-CONSCIOUS ABOUT YOUR BODY.  I
SAW YOUR PICTURES AND COULDN'T BELIEVE HOW MUCH YOUR SCAR ON YOUR
RIGHT SHOULDER LOOKED LIKE THE SCAR ON THE MIDDLE OF MY CHEST IN
BETWEEN MY BREAST.  I FEEL AS WELL THAT THIS SCAR, THE BIGGEST ONE, IS A
PART OF ME, SOMETIMES I WONDER IF I COULD EVER LIVE WITHOUT IT, I'M SO
USED TO IT.  

IT MAY SEEM WEIRD BUT I SCRATCH OR RUB IT OUT OF HABIT NOW WHEN I'M
NERVOUS OR IN DEEP THOUGHT!  I CAN'T WEAR BATHING SUITS OR LOW CUT
SHIRTS OR DRESSES.  I INVEST HEAVILY IN UNDERGARMENTS TO WEAR UNDER
MY SHIRTS TO HIDE IT FROM VIEW.  SOMETIMES A PERSON WILL CATCH A
GLIMPSE OF IT AND ASK QUESTIONS.  ONE DAY AT WORK THIS LITTLE BOY
COULDN'T ASK ENOUGHT QUESTIONS TO THE EMBARRESSMENT OF HIS MOTHER.  
I AM 36 YEARS OLD AND SINGLE AND WHEN I THINK OF MEETING A GUY FOR THE
FIRST TIME I WORRY OVER WHAT HE WILL THINK WHEN HE REALIZES THE SCAR.  
WELL, KIM, I GUESS THERE IS A WEB SITE FOR EVERYTHING! GOOD-LUCK TO YOU
AND GOODBYE.
Hello Kim,
My name is K and I'm 23 living with keloids. The only
one in my circle and family with them and everyday it
seems
like they grow and everyday it seems like I move in a
greater
state of depression. Guys look at them like they're soooo
nasty and wont approach me , so I try to hide them and
myself
all the time. They are a part of me, but it's so hard to
accept them when no one else will. What was your
strategy in
dealing with your keloids? Mine are on my chest private
area
(very unnoticeable) and chin area. Thanks for any
response. I
love your website too.



Meet "Righty". He's located on the
back of my right shoulder. I first
noticed him after a scar from a battle
wound (my brother stuck me with a
pencil at age 9). "Righty" started out
being no bigger than a dime and has
grown into a very thick, healthy
keloid, measuring in at
1 1/2 inches across.

Notice how unsightly he is and how
self-conscious he makes me when I
want to wear "cute" tank tops and
swim suits.
kim,

i found your site and just
wanted to write. i know you've
probably
tried all kinds of treatments, but i
wanted to let you know that i had
some success with regular
aspirin.  i'm white, but form
keloids from
deep cuts, piercings, etc.  i love
piercings though, so i continue
to
deal with keloid scars.

try crushing regular, cheap
aspirin with water and making a
paste.
put this paste on your keloid
every night (or day if possible)
until
the keloid goes away. the skin
will start to peel and eventually
the
keloid will "peel" off.  you may
try this on your earlobe where it
is
small and relatively easy to
apply the paste.

i hope you find it helpful. it
worked for me!

take care,
j.


Hello!

My name is X. I just recently joined www.keloid-scars.com and saw
the link to your webpage. I must commend you on being public with
them... your scars are, in a word, WICKED AWESOME! (ok,
that's two words... hehe!) :D I loved the pictures of your scars...
and I can relate to your struggle with them. I have only recently
become public with my scar after a childhood of ridicule... I guess its
nice to know someone who shares my experience, as sad as that may
seem.

I myself have created a LiveJournal support group for people with
keloids :) It's celebrating their unique beauty, and helping people be
more open about them ^_^ Check it out!

Info: http://www.livejournal.com/userinfo.bml?user=keloid_scar
Community: http://www.livejournal.com/community/keloid_scar/

Thanks, and stay in touch!
~X~